Understanding Someone Living with Dementia

Dementia is a complex condition. Not only does it impact a person’s memory, but also their perception, thoughts and emotions. For a caregiver, understanding the mind of someone living with dementia can help them provide a much better standard of care and more tailored support. This can allow the person living with dementia to feel that there is always someone on their side.

Here, we’ve explored what goes on in the mind of someone living with dementia. While every person is unique, there are certain factors that are similar within those who live with the condition.

Does a person with dementia know they’re confused?

The perception of confusion can vary. Typically, in the early stages of dementia, people may be aware of their lapses in memory, and this can lead to anxiety and frustration. As the symptoms of dementia progress, this awareness can reduce, and it may not be possible for them to recognise that they are confused. With that being said, sometimes, in the latter stages, there can be moments of self-awareness and clarity.

Do people with dementia know they have dementia?

Again, understanding a dementia diagnosis can be complicated. At the early stages, it may be possible for a loved one to understand their diagnosis, and its implications. Depending on when dementia is diagnosed, things may have progressed further, and your loved one may not be aware or fully grasp the concept of the condition. While some people may consider this helpful in not bringing the same level of frustration and fear, it can also cause challenges. For example, someone who is not aware of their diagnosis may refuse to accept help or care.

How does a person feel with dementia?

There are many emotions that may occur within a person living with dementia. These can include negative emotions such as fear and anxiety, frustration, anger, loneliness and depression. However, it is certainly possible for someone with dementia to feel joy, relaxation, love and happiness. Knowing how to trigger these feelings in your loved one will give you the opportunity to make them happy, even as dementia progresses. If you have the support of a live-in carer or home carer, then talk to them about how best to do this.

What triggers anger in dementia patients?

Typically, anger for those living with dementia stems from feelings such as confusion, fear and frustration. However, it can also stem from physical discomfort. Some triggers can include:

  • Difficulties with communication – An inability to express themselves clearly or understand conceptual conversation can lead to frustration.
  • Changes in routine – Those living with dementia might find it more difficult to adapt to a new situation or unexpected occurrences.
  • Environment – Large crowds or loud music can be too overwhelming for some people living with dementia. This can trigger distress.
  • Physical discomfort/pain – Discomfort and pain can cause a person to express anger or aggression outwardly. If a person living with dementia has communication difficulties, it may be difficult to spot that they are in physical discomfort early enough to avoid it getting worse.

What do people living with dementia think about?

Research shows that people with dementia often think about the same things as those without dementia. These can be daily events, past experiences, and their loved ones. Typically, however, these thoughts can be scattered and most often focused on the past. It is essential to understand that hallucinations or delusions can also occur in those living with dementia, and it is important to enable them to validate their thoughts and feelings where possible.